About the Show
I decided to start The Ankylosing Spondylitis Podcast to share my story with anyone wanting to listen, to provide hope and inspiration to those affected with Ankylosing Spondylitis directly or indirectly, and to provide an outlet for anyone who wanted to share their experiences.
"I just wanted to reach out and thank you for your podcast. I'm 41 and was diagnosed yesterday after 10 years of being passed around to doctors with no answers. I'm thankful for answers, but I'm scared and sad at the same time. I found your podcast on Spotify. Hearing you share your personal experiences and knowledge is so helpful. Thank you!"
It's the messages I get like this that encourage me to keep hosting and producing The Ankylosing Spondylitis Podcast.
About the Host
I was diagnosed with Ankylosing Spondylitis over 35 years ago. This was before internet, podcasts or any type of easily accessible information. In the decades since my diagnosis so much has changed. Ankylosing Spondylitis changed the trajectory of my life (or what I imagined my life would be like as a kid). I was diagnosed at 14 in 1984 and the only available medication was NSAIDs. The disease spread quickly through my body and by age 21 I had my left hip replaced and by age 23 my right hip was replaced. Over the years there would be more surgeries, complications, fusing, and overall pain. I've used many of the different medications, including biologics. I am on my third biologic and this one seems to be working after over 2 years on it.
In addition to creating and producing The Ankylosing Spondylitis Podcast, I assist on the website ankylosingspondylitis.net and on their Facebook page moderating comments and hopefully writing stories about my experiences with Ankylosing Spondylitis.