Lisa Marie Basile - Author and Ankylosing Spondylitis Advocate
I see a lot of questions, across the different Facebook forums, from people that are fairly new to being diagnosed with Ankylosing Spondylitis.
This week's topic is about sleep, and some tips to help you hopefully get a better night's sleep.
I've got a really great guest. I've got Cary King on and Cary has been dealing with Ankylosing Spondylitis most of his life and was diagnosed about 12 years ago or so in his late 40s.
So today's show is about Axial Spondyloarthritis. For some of you that are new, you might hear that name and say I've not heard that before.
There's many, many times that we all look and say, why me, I miss what I could do. You know, I really am tired.
I want to talk to folks about Beyond Back Pain, Five Warning Signs That You Might Have Ankylosing Spondylitis.
I think it's awesome to bring in fellow people with Ankylosing Spondylitis to not only hear their story, but also learn from them about what they're doing to deal with the pain deal with Ankylosing Spondylitis.
What do I do with this flare, it's killing me? I'm feeling so bad, fatigue, everything. I don't know what to do. How do I get help with that? And you know, it's really interesting because flares affect everyone different.
This week's message is all about ways to distress yourself to hopefully put yourself in a better position with your Ankylosing Spondylitis and your mental state.
So the notification came the other day, and I see this title it says Be True To Yourself, Even if it Hurts.
I'm really glad that you could join me today because we're going to have fun today, we're going to be combining some of my favorite subjects history, modern medicine, and a little bit of speculation mixed in. So stay tuned. This one should be a lot of fun.
Today I'm very excited because we're going to touch on a subject that I get a lot of requests and information about, and that is yoga, specifically yoga for people that have Ankylosing Spondylitis.
So let's talk fatigue. This week has been quite the challenge. I've been just tired and worn out all week regardless of the amount of sleep I get.
With Ankylosing Spondylitis, we're all just trying to alleviate as much of the pain that is associated with Ankylosing Spondylitis as we can. And at its basic core, you'd think that chiropractic care would make a lot of sense since it revolves around the spine, the musculoskeletal system.
Join us for a group discussion on our Ankylosing Spondylitis Journey with Jayson Sacco, Aerilyn Medina, Michelle Bell, and Jed Finley.
I see a lot of questions asked online every day about Ankylosing Spondylitis and these questions range from real basic to very detailed. So I put together these nine questions and some answers to hopefully help you as you start off your journey with Ankylosing Spondylitis.
Maybe you don't have Ankylosing Spondylitis. But maybe you're dealing with non-radiographic axial spondyloarthritis. Wow, say that multiple times real fast.
How can we overcome the burden of guilt? It was pretty interesting because I really can understand this, you know, the guilt of 'why me.'
I wanted to look at pain and your emotions today and I happen to find a really neat article on that titled Pain and your Emotions on ankylosingspondylitis.net.
This is by no means going to cover everything. But it's really good, I think, a starting point for a lot of people and a really good possible spot to reset for many of us that have had the disease for quite a while.
"Well, I can I understand why people are married to the next Ankylosing Spondylitis because like you that's what I was diagnosed with. And after my disease onset 40 years ago, but times change the technology changes, and also the name Ankylosing Spondylitis was never a universally used name, still isn't." - Michael Mallinson
In today's episode, I want to talk about Axial Spondyloarthritis. Man, that's a mouthful to even just say, let alone think about. So what is Axial spondyloarthritis? Well, it is a type of inflammatory arthritis that causes lower back pain among other symptoms, you know, affecting not only your lower back but your si joints, hip joints, knees, spine.
What's it like to be a woman with Ankylosing Spondylitis? This is where I just ran into a fantastic young lady named Jes Hojsan. And I have her on the line. And we're going to talk about being a woman with Ankylosing Spondylitis.
I can't tell you how excited I am today to have Dr. Grace Levy-Clarke on. The reason is that she is an ophthalmologist based in the Tampa Florida area. And one of the things that affects not only myself, and I have the damage in my right eye to prove it, but many of us, is the iritis/uveitis issue.
In today's show, I want to look at the relationship between your microbiome and Ankylosing Spondylitis. The reason for this came about from looking at a few items online and in some of the forums on Facebook.
I've been dealing with this for 36 years now since I was officially diagnosed. We all know that having a chronic condition like Ankylosing Spondylitis can impact all of our entire existence - our entire lifestyle that we're used to.
Today I wanted to talk about an article I found in Creaky Joints, which is a website that I like to go to. And it was really interesting because I've talked about a few of these items in previous episodes.
Today, I thought I would talk about myths and facts related to Ankylosing Spondylitis. AS is a chronic condition, and it can be very difficult to explain to others. As soon as you tell somebody that it's an autoimmune disease, they look at you not knowing what that means.
This is going to be really a neat episode because I've got James Allen on the line. James is a fellow ankylosing spondylitis person. And James has developed a really cool app called Chronic Insights.
I'm very lucky today to have on Dr. David Fox. Dr. Fox is one of the co-chairs of the University of Michigan's Autoimmune Center of Excellence. Dr. Fox has been a rheumatologist for a number of years, a member of the medical school faculty since 1985, Dr. Foxx is a professor of Internal Medicine, and from 1990 to 2018 was the chief of the Division of Rheumatology with the University of Michigan's medical school.
Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. It's so great to be here. As I record this sitting in my apartment it's March of 2020 and it's about 55 degrees outside here in Michigan. So I know that's not warm to many of you, but for this winter, it just tells us that now we're starting to head into spring and the warm weather is on its way and man that just makes me so happy.
Here are five common relationship issues you may face when you have Ankylosing Spondylitis and hopefully some tips to help maintain a healthy partnership.
So I thought these seven steps are really good, really no matter where you sit in your diagnosis for dealing with a rheumatologist to make sure that you both are on the same page. So again, as we know, Ankylosing Spondylitis, it's a form of arthritis and it affects your spine, your hips, you know, pretty much everywhere.
So the Question of the Week, this week, I kind of decided to, instead of speaking a specific question, I'm going to pick one that I've seen a recurring theme for over the last several years, and that's something to use of DMARDs or otherwise known as biologics.
And now on to today's topic, and I came across this article and it is about a year and a half old. But I don't think that much has changed in relation to this topic. And that is, you know, Ankylosing Spondylitis in Men and Women. What are some of the differences?
Welcome to this episode of The ankylosing spondylitis podcast. This is going to be a little bit different of an episode today I'm really excited. I've got Courtney Garber on and Courtney is the Assistant Store Manager and CBD Educator of the Fort Collins, Colorado retail store for Joy Organics, which is a CBD manufacturing company, retail sales.
Now, onto this week's topic. A few months ago, I came across a great website called ankylosingspondylitis net. Now, many of you may be familiar with it. I actually was not at the time when I came across it. And it found it to just be a fantastic reservoir of information. There are tons of articles on the website written by people with Ankylosing Spondylitis.
So in this week's episode, I wanted to look at medical marijuana and the use for Ankylosing Spondylitis. As I was looking around the website a little bit, I went to ankylosingspondylitis.net, which has just a great amount of resources for people with Ankylosing Spondylitis and they had a really good article on medical marijuana for Ankylosing Spondylitis as we know, medical marijuana, recreational marijuana, you know, it all comes from the cannabis plant.
On this week's episode, we're going to be talking about CBD, whether it be CBD oil, gummies, cream, or vaping, I'm going to bring the little bit of knowledge that I have, and hopefully, get some more experts in here later on during the year that can talk far more in-depth about CBD and how to use it to the best of everybody's advantage.
Hello, and welcome to this episode of The Ankylosing Spondylitis Podcast. My name is Jayson Sacco and I want to welcome you to another episode where we're going to talk about something that affects all of us to various degrees, fatigue.
Hello, and welcome to 2020. This is The Ankylosing Spondylitis Podcast and my name is Jayson Sacco and thank you for joining me today. You know, as many do on this first day of the year, I've been reflecting on my life and my interactions with Ankylosing Spondylitis. You know, I've been...